Last Monday I went down to Cornwall for just under a week to spend some time with Paddy and his parents, who very kindly drove me down. For those of you who don’t know, I live in Cornwall with Paddy but I’ve temporarily been living at home with my parents in Gloucestershire since March to have medical tests/treatment. I have visited a couple of times since moving home but this time I was visiting because it was the Tall Ships Regatta in Falmouth. Even though I was feeling pretty terrible by my standards, I still managed a few little trips out which was a BIG achievement as I’ve not been out much at all recently due to the severity of my condition.
I can’t tell you how lovely it was to spend some quality time with my this one! Being away from each other is really hard but when we see each other it reminds us how worth it it is On the second day, after a day in bed recovering from the travelling, we went for lunch at our favourite cafe in Falmouth – Good Vibes where I had a hearty tomato, cucumber and chilli soup which was possibly the best tomato soup I’ve ever tried!
On Friday we got up early to go down to the docks to see the tall ships when it opened for the day as we figured that would be the quietest time. I can’t cope with crowds of people due to the overload of sensory information they cause; I get very panicked and overwhelmed. The festival brings in thousands and thousands of people so we needed to time it right, which we did. Pads pushed me around the docks and the little market surrounding it which was wonderful – the ships were absolutely spectacular! I was then done for the day. Although there was so much going on Thursday-Sunday for the festival, including a parade, opportunities to go on the ships, fireworks, more markets etc, which I wasn’t well enough to experience, I was more than happy with being able to see the ships for an hour and I felt so greatful to be able to achieve that.
Saturday arrived and so did extreme fatigue and very bad tachycardia…the post exertional malaise had started to set in. I ummed and arghed all morning about whether to go out or not. It was my last day and I was desperate to go out to lunch with paddy and his parents to make the most of it but my body was telling me to rest and recharge. There were tears as I felt so poorly but after a little pep talk from pads I made the decision to go for an hour or so. Even though I felt like a zombie at lunch – spaced out, sick and exhausted, I still really really enjoyed it and glad I pushed myself to do it! We went to the most beautiful gardens – Portager Gardens – to eat. The cafe is a newly converted green house and produces the most AMAZING vegetarian food using their own organic produce that they grow on site. They even make vegan, gluten free cakes which are hard to come by!!Surrounding the cafe are hammocks, a badminton net, table tennis tables, vegetable gardens and stunning flowers. I wasn’t well enough that day to stay and relax but I will return on a better day and spend an afternoon there in their beautiful haven and rest for a while
I am really proud of myself for what I achieved on my week away! What have you achieved recently? This week is going to involve lots of sleeping and Netflix watching in bed to rest and recover. Ciao!