3 MONTHS POST USA TRIP UPDATE | Lyme Disease Treatment
Hi everyone! It’s been a while. Sorry it has taken me so long to do an update video…I spent a long time recovering from my mammoth trip home and then got out of the habit… View Post
USA Trip For Lyme Disease Treatment | third week of treatment
It’s Karen posting here (Sophia’s mum) as she is still recovering from the treatment and the journey home. Sophia’s fourth vlog shows her third week at the USA clinic when her treatment stepped up to 5… View Post
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I have some exciting news – I’ve been nominated for a national diversity award!
Over a month a go now an unexpected email popped into my mailbox telling me that I had been nominated for Positive Roll Model at The National Diversity Awards (in the Disability section) and to be honest I am… View Post
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Finally some Independence: Hiring a motorised beach wheelchair (Perranporth Beach)
Easter Friday was the best day of 2016 so far for me. For the first time in over two years I had a little independence. We hired a motorised wheelchair on Perranporth Beach and I got to… View Post
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Christmas as a Spoonie
So everyones getting ready to celebrate christmas. Some are already prepared; presents wrapped, stockings filled and pigs-in-blankets in the freezer. It’s the party season and the busiest time of the year. For spoonies/those with chronic… View Post
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Dysautonomia Awareness Month October 2015 – The link between POTS and Lyme Disease
Dysautonomia Awareness Month has come round so quickly – It doesn’t seem like that long ago that I was writing my first posts to help the cause this time last year. I wrote two posts –… View Post
