It’s Karen posting here (Sophia’s mum) as she is still recovering from the treatment and the journey home. Sophia’s fourth vlog shows her third week at the USA clinic when her treatment stepped up to 5… View Post
Dysautonomia Awareness Month has come round so quickly – It doesn’t seem like that long ago that I was writing my first posts to help the cause this time last year. I wrote two posts –… View Post
I have been in a chronic pain flare up since the beginning of January – the longest and worst flare to date! The pain I have experienced in this flare has probably been the worst… View Post
The last month or so has been a real toughie. No matter how much I rest I don’t seem to have any ‘good days’ at the moment. It was particularly frustrating on Saturday as it was… View Post
If you suffer from a chronic illness, I am sure you’re familiar with the question…’will I ever get better?‘ I have asked myself this question many times over the years I’ve been poorly. POTS has… View Post
There are lots of things that you should try not to say to those with chronic illnesses such as ‘just try not to focus on it,’ ‘you look so well, you must be feeling better,’… View Post
