Hold onto hope

If you suffer from a chronic illness, I am sure you’re familiar with the question…’will I ever get better?‘ I have asked myself this question many times over the years I’ve been poorly.

POTS has changed my life completely – I am so restricted now; even the simplest of things are a challenge – showering, talking on the phone, reading, sitting upright etc. I have learnt to accept that this is the way my life is going to be for a little while, but I always have hope that I will recover to a degree where I can still live my life. I had an appointment last week that was disappointing – I am not responding as we’d have liked to the medication used to alleviate POTS symptoms. My consultant does’t seem as confident as he was when I first saw him, when he said he was ‘quietly confident that he could improve my quality of life significantly’. But I guess thats before he discovered how complicated I am – a medical mystery as others have called me. We discussed that potentially I may have something coinciding with the POTS such as Lyme or ME. Last week was a tough one as I lost a little bit of hope. Not all of it, but a little. I am worried that it is going to be a longer and more complicated road that I thought to improve my health. But I will do whatever it takes to beat my illness and try never to loose hope. Hope is such a powerful tool; it drives us forward and it allows us to have a positive perspective of the future. It keeps us going. I am going to spend this week trying to regain that little bit of hope back.

tumblr_msrkq7MqY21rpu8e5o1_500If you ever find yourself loosing hope, think of this quote (my favourite quote of all time) ‘Just when the caterpillar thought the world was over…it became a butterfly.’



  1. berrystylegirl February 3, 2015 / 2:21 pm

    Sophia, wonderful girl. You are a gift in my life…and I believe you won’t lose hope, you’ll find what can help you. Thank you for this post…

    • spooniesophia February 4, 2015 / 1:01 pm

      No problem Polina <3 I hope you're still holding onto hope sweetie xox

  2. albert February 3, 2015 / 3:43 pm

    “Berry” said just what I was thinking and feeling, so I’ll simply add this: I love the format above. The whole thing makes me as a reader hopeful; it projects a spirit that is infectious, if that term fits. It shows that the youthful drive towards life will not be denied. Your blog helps me when I get fearful about problems in my own family, esp.my 16 yr old granddaughter. Thank you, Sophia, for helping to make the larger world (e.g. here in Missouri) stronger.

    • spooniesophia February 4, 2015 / 1:02 pm

      I am so glad it instilled hope in you Albert! Thank you for taking the time to leave a lovely comment. Sending healing vibes your way.

  3. Donna // Fibro Geek February 3, 2015 / 10:20 pm

    It’s so important to cling onto hope isn’t it? It is ultimately what keeps us going. It’s a really hard thing to do when your health is so poor. I’m sorry to hear that you haven’t made the progress you expected but I also think we can be so focussed on where we think we should be, that we forget just how far we have already come. You have done amazing things with your diet and you are an inspiration. Stay strong x

    • spooniesophia February 4, 2015 / 1:04 pm

      Yes it is Donna. If we don’t have hope, then what do we have?! Yes I know, like when you can’t see even a glimmer of light at the end of the tunnel, but we have to always know that it’s not always going to be like this <3 And yes, we have come so far already :) Keep going x

  4. Faith February 4, 2015 / 3:32 am

    I have lupus and I SO understand this. Hope is a word I keep running into an its so powerful. Hope is all we have. I have hope that God can bring me through, and that’s really my anchor. I love the picture you added too:)

    I pray for so many spoons for you this week. Stay strong and never give up hope!


    • spooniesophia February 4, 2015 / 1:05 pm

      Hi Faith, Sorry to hear about your Lupus. I hope that for you too lovely and I am sending spoons your way also.

      You stay strong too! x

  5. Jenny February 5, 2015 / 3:37 pm

    I in a similar situation to you at the moment, I’ve suffered a knock back and I’m trying to keep hope. You are a real inspiration, keep doing what you are doing! :) P.S. love the new artwork! :)

    • spooniesophia February 17, 2015 / 2:27 pm

      Hi jenny, sorry to hear things have been tough for you too recently. I really hope you feel brighter soon! Keep going!
      Aww thank you lovely, i will do!! xx

  6. Hayley-Eszti February 6, 2015 / 1:44 am

    Aww you are wonderful Soph and so bloomin stong. We have to cling on to hope because it’s all we have, but with the tiniest bit of hope we can move forward huge amounts. The little photo is so cute too, definitely perfect for us!

  7. Rachel February 13, 2015 / 6:00 pm

    I have not long come across the lovely quote that you popped in at the end and I think it is such a beautiful way to look at life’s changes. This is one of my favourite posts that you have written because it is so honest and rings so truly in me. I’m sorry that things have been harder than usual for you in the last few months and I will always have my fingers crossed that things will improve. You should be incredibly proud of your strength and wise words. So much love xx

    • spooniesophia February 17, 2015 / 2:32 pm

      Thank you so much Rach, so glad you enjoyed reading it! I am so grateful for your support sweetie and I really hope things improve for you soon too! Lots of love xxx

  8. Faye February 16, 2015 / 3:04 pm

    You are so strong Soph and you’re doing amazing. Hold onto that hope!
    Love you xxx

    • spooniesophia February 17, 2015 / 2:34 pm

      Love you too little one! As are you, you constantly inspire and amaze me with your strength and determination! xxx

  9. xxx October 23, 2015 / 1:55 am

    My Ьrother suggested I might like this website.

    He was entirely rigɦt. This post truly made my day.
    You can not imagine just how much time I had spent for this
    info! Thanks!

  10. หนังเอ็ก March 5, 2016 / 8:16 am

    Hi there, I would like to subscribe for this blog to take newest updates,
    so where can i do it please help out.

    • Sophia March 7, 2016 / 2:50 pm

      There is a Subscribe to my blog option on the right hand column. You just need to enter your email address :)

Leave a Reply

Your email address will not be published. Required fields are marked *