Being ill on top of being chronically ill

Monday afternoon/evening I started getting some new symptoms including widespread muscle aches, bone pain in my legs and hips, jaw pain, stomach upset, and chills/temperature. Having new symptoms on top of a chronic illness not only makes you feel even more poorly, but can also be very frightening. I’m sure lots of other chronic illness sufferers can relate to the fear that you get everytime something a bit different happens in your body; something you don’t recognise. I remember when I first started getting POTS symptoms in January this year, I was absolutely terrified as I’d never experienced anything like it before and it wasn’t the chronic leg pain I was used to. I was terrified for months and months as it took such a long time to get a diagnosis. So many scenarios go through your mind as to what could be the cause and its really hard not to focus on it.

Photo by Roberto Caruso2

Photo by Roberto Caruso2

I must admit that the first thing I do when this happens is search the internet which I know isn’t the right thing to do but I still do it sometimes. On Monday evening I had a quick scan to try and find answers. Do I have yet another illness? Is it a virus or an infection? Are the symptoms attributed to POTS? Could I have Lyme Disease and this is a Lyme flare as it was suspected a little while ago? etc. But I never feel satisfied after surfing the web for answers and I still felt scared! I’m sure if I was well and hadn’t been through what I have with my health, I would just have assumed I had a virus and it would go away in a few days. But because I’ve got not one, but two chronic illnesses I always assume that anything new is going to be chronic too.

I have felt much calmer in the last few days and have more of a clear head even though I am still feeling much the same, as I have had time to reflect and I am pretty confident it’s just a virus or infection. I say ‘just and infection or virus’ but I mean its better than having something more serious and long lasting. Having a virus or infection knocks us spoonies (chronic illness sufferers – find out why we are called spoonies in my previous post) for six as our immune systems are already low and we’re already very weak so it takes us so much longer to recover from them. Fingers crossed this won’t last much longer as it’s making things even harder. I know lots of spoonies are suffering too, its that time of year, and i want to send you all lots of love and healing vibes!

I’ve been though a lot with my health but I’ve always managed to get through the really tough times and I will never give up even if I have to face further health challenges in the future.

How are you feeling at the moment? x

12 Comments

  1. Captain Tatty Bojangles December 12, 2014 / 2:55 pm

    Oh no! I hope you feel better soon :( I can totally relate to this, such a good read. I was struck with something viral a few weeks back which I am still recovering from, and it was very scary! I had no idea what it was at first, thought it was my POTs and I panicked! Glad I am not the only one! xx

    • spooniesophia December 19, 2014 / 11:52 am

      Thank you Tatty, starting to feel a little bit better, still totally wiped out though! Sorry to hear you’ve been extra poorly too! Its scary isn’t it?! We already have so much to deal with!! Feel better soon <3 xxx

  2. Louise December 12, 2014 / 2:55 pm

    Get well soon x

    • spooniesophia December 19, 2014 / 11:52 am

      Thanks Louise! Hope you’re doing ok xx

  3. Faye December 12, 2014 / 3:11 pm

    So glad to hear you’re feeling a little less anxious lovely. That calmer feeling will go a long way in fighting it off. Sending love as always xxxx

    • spooniesophia December 19, 2014 / 11:53 am

      Thanks Faye! Anxiety makes everything worse doesn’t it?! But its just so hard to snap out of it when your in it! Sending you so much love too xxx

  4. Sarah Warren December 12, 2014 / 3:18 pm

    Sorry you have been feeling so rough. Most of these chronic disease do seem to have symptoms that flare up. I didnt start to stabalise until I began treatment for lyme. I still get the relapses and fluctuations but so much better. Hope you can find some answers to help you

    • spooniesophia December 19, 2014 / 11:53 am

      Glad to hear you’re doing much better than you were Sarah! I hope things continue to improve for you <3 Thanks! x

  5. HerBalancedLife December 12, 2014 / 4:38 pm

    Aw I can imagine how frightening it might be but I really do hope you get better :) and the fact that your opening up about it makes it easier sometimes to accept that we are who we are. You really seem to make the best of who you are! I just love your blog and posts :)

    • spooniesophia December 19, 2014 / 11:54 am

      Thank you sweetie. Yes you’re absolutely right, opening up always makes me feel better and accept the situation! Aww you’re so sweet, thanks :) Hope you’re having a nice day xx

  6. Rachel January 11, 2015 / 12:14 pm

    I’ve been looking for a post like this to explain to my loved ones how I’m feeling for a really long time and I’m so glad that it’s come from you Soph! I’ve shared this is in my latest blog post as I just think it’s SO good <3

  7. Miriam September 7, 2017 / 5:26 pm

    Thank you for sharing this and for helping me to feel a little less alone at the moment. I really appreciate that and I am glad I found your blog, whilst doing some research to learn more about how chronic illness affects pets. I’m definitely interested in reading more of what you write in the future… is there some way I can subscribe to get alerted to new posts please? :-)

    I resonated with the chronic illness posts on your blog and particularly this one, because I am currently awaiting a firm diagnosis for two chronic health issues – one of which is incapacitating as it comes with limb pain and numbness plus other symptoms. I have been told I have atypical asthma that sometimes makes it hard to breathe. I am being investigated for a possible gallblader disease, I am also currently on antibiotics for an infection after I got bitten a lot by some insects despite wearing sensible clothing and I also appear to have recently picked up a virus somehow that makes rooms appear to spin when I stand up.

    On top of that, I also recently broke up with my boyfriend and I started the year with two of my (now ex) best friends having a mega go at me because from their perspective I wasn’t doing enough to be there for them whilst I was ill. I lost both friends after that, because despite me attempting to explain repeatedly what was really happening and why, they just didn’t get it and insisted I was doing something wrong. I loved reading your post about the spoon theory too, because it really resonated with me after that experience. My world has become a lot more isolated at the moment as a result of all 3 of those relationships ending, although my remaining friends (most of whom are from uni and live far away) and amazing family are wonderful & doing their absolute best to be there for me. My family are an amazing support, who truly understand what I’m going through and who I couldn’t cope without at the moment.

    Plenty of hugs, best wishes and thanks! Now having used at least one spoon to write this… I’m going to go take a nap :-) xx

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