Showering sick:When showering is like running a marathon

Since becoming ill, showers have been a huge challenge for me. They are absolutely exhausting!! On the days I shower, I am unable to do much else for the rest of the day. As soon as I’ve had a shower I have to have a very long lie down straight after as I can barely move I am so weak, dizzy and very out of breath. My mum has to dry my hair for me as I simply don’t have the energy/spoons to do it. Of course, I can’t avoid showering, so I have to put myself through this ordeal knowing the consequences, several times a week. 20140528-170625-61585998.jpg I recently found out why I feel so terrible after having a shower. There are several reasons …

1. The heat itself Those with conditions such as lyme Disease, M.E, chronic fatigue syndrome and more, often suffer from some sort of orthostatic intolerance such as POTS (Postural Tachycardia Syndrome) or have low blood pressure. For these people standing up causes their heart to pound and their blood pressure to drop, leaving them dizzy, nauseous and fatigued. Heat makes this even worse. When in a hot shower the heart has to work overtime to stop them from passing out and to keep them standing up. Showers are therefore like running a marathon. I have an orthostatic intolerance and have a very fast heart rate (100 BPM resting, 130-140 BPM standing and 170 BPM from slowly walking up stairs) which is exacerbated further when in the heat. No wonder I am so tired after a hot shower!!

2. Physical exertion For those with Lyme, chronic fatigue syndrome, etc, even small amounts of exertion can be too much. A shower takes lots more energy than we realise…you’re standing the whole time, doing a fair amount of bending, stretching and reaching, and vigorously lathering up your head and body.

3. Temperature Sensitivity (allyodynia) While the hot water may feel good, it can cause a very strange reaction for those who suffer from allodynia (a symptom of lyme, Fibromyalgia etc). Allodynia is pain generally on the skin, caused by something that wouldn’t normally cause pain (such as clothing, small amounts of pressure and heat). So in the case of showering – heat causes the pain. I’ve had allyodynia for a number of years – when I’m in the sun or in a hot shower or bath, my legs tremble, I get sharp shooting and stabbing pains and I get muscle twitches. This is due to over-reactive nerves. Not a nice experience.

Saving energy is always my top priority, so I have had to learn how to have a shower without zapping all of my energy completely. So here are some tips for fellow sufferers:

Use a shower stool A waterproof shower stool or chair to go inside the shower is an essential item if you are unable to stand long enough to have a shower. The stool or chair will provide support, stability, and safety, allowing you to enjoy the shower as best you can. I hired mine from The Red Cross. It’s helped so much as currently I am unable to stand for short periods at the moment due to exhaustion.

My shower stool that I rent from the Red Cross.

My shower stool that I rent from the Red Cross.

Have a cool shower

I know they aren’t pleasant, especially in winter…but they really do reduce allodynia. I can’t tolerate any higher than 30 degrees in my shower as my legs will scream otherwise. In addition reducing the heat will have a lesser impact on your symptoms.

20140528-162304-58984428.jpg Have everything ready for when you crash afterwards

Have your big fluffy dressing gown at the ready for when you get out of the shower and have things to keep you occupied around your bed for when you’re having your big rest such as iPod, book, some snacks, laptop ready with your favourite series on (mine is Episodes at the moment :)).

Episodes is one of my favourite things to watch at the moment!

Episodes is one of my favourite things to watch at the moment!

Leave your hair to dry naturally or get someone else do dry it

Hair dryers are heavy which isn’t ideal for tired, achey, weak arms…which are even more tired, achey and weak after having had a shower. So my advice is to avoid using them if at all possible of you’re on your own. Or I get my Mum to do it for me if she is around, get someone else to do its. I end up looking like a deer caught in headlights when my mum does it but she gets the job done :)

If I can plan ahead and use the tips above it does improve how I manage a shower and how much I can function afterwards. It doesn’t always guarantee I will feel great, but it does greatly improve my odds. I hope that this post was useful to you and that the tips can help some of you who are experiencing issues with showering as well. Good luck!

4 Comments

  1. AddieMarie May 29, 2014 / 4:42 am

    It’s sad how much just showering takes. I took a quick, 5 minute one last night, while sitting on a shower chair…and then sat and sobbed for like 30 minutes because I couldn’t stand up to get myself OUT of the shower once I was done. It took me over an hour to get out, dressed, and in to bed. Awful. :[

    • spooniesophia May 29, 2014 / 11:15 am

      It really is sad. So sorry you had a bad experience last night, those are very frightening. But have hope, it’s not going to be like this forever! Keep going! Hope so of the tips help you a little. Sending you healing love xxx

  2. lennae87 June 1, 2014 / 12:13 pm

    Some good tips there. It really does suck that a shower takes it out us and uses so many spoons. It does get better though :)

  3. Lisa July 22, 2016 / 9:15 pm

    I’m so glad I found this page we could be twins in regards to our pain and shower experiences lol, I find a travel hair dryer helps as it’s lighter to hold x

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